Contact Us
Kabuki Syndrome Registry
Contact Us
All Things Kabuki
5155 E Capon Circle
Wasilla, AK 99654
https://www.allthingskabuki.org
Registry Contact
Rene King
registry@allthingskabuki.org
Institutional Review Board (IRB)
North Star Review Board
learningirb.org
info@northstarreviewboard.org
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An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board at https://learningirb.org.
Visit the National Organization for Rare Disorders home page at rarediseases.org.