All Things Kabuki

5155 E Capon Circle

Wasilla, AK 99654


Phone: 907-360-8590

Social Media: Facebook & Instagram @AllThingsKabuki


Institutional Review Board (IRB)

An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this Registry. An institutional review board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies.  For questions about your rights as a Study Participant in this Registry or to discuss other study related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board at 1-877-673-8439 (toll free) or via e-mail at  Review and approval of this Registry by North Star Review Board is not an endorsement of this Registry or its outcome.

Visit the National Organization for Rare Disorders home page at